Alzheimer’s Disease: A Challenge To Patient’s Family Members And Care-Givers

By Dr. Kaustav Chakraborty

Alzheimer’s disease leads to the death of brain cells and also causes the shrinking of the brain. The disease commonly known as AD is the most common cause of dementia – a fatal gradual decline in memory, logical thinking, memory, behavioral patterns, and social skills, which in large affect a person’s ability to function and daily work. There is so far no conclusive evidence about its cause. However, the abnormal buildup of proteins like amyloids that form plaques in and around brain cells is considered one of the causes behind the disease. Unfortunately, there is no definite medicine so far developed to cure Alzheimer’s disease. Scientists are engaged in studies but nothing so far has been proven to be effective in preventing or delaying dementia caused by AD. Rather care and support to the patient by the family and the near ones with empathy can do miracles. September 21 is observed as World Alzheimer’s Day. This is a global effort to raise awareness and challenge the stigma around the disease. Professor Kaustav Chakraborty, Head of the Psychiatry Department, of the College of Medicine & JNM Hospital, Kalyani who also runs BRAIN & MIND Clinic has narrated how awareness and support by the caregivers to the AD patients can become effective in the absence of any conclusive remedy.

  • Home Care for Persons with Dementia

Caring for a loved one with dementia at home can be rewarding and challenging. Dementia is a progressive condition that affects memory, cognitive abilities, and daily functioning. Home care requires patience, empathy, and adaptability. In this write-up, I will attempt to outline essential strategies and considerations for providing the best possible care for persons with dementia in a home setting.

  • Understanding Dementia

Dementia encompasses various conditions, with Alzheimer’s disease being the most common. It’s crucial to educate yourself about the specific type of dementia your loved one has, as different types may require distinct care approaches.

  • Creating a Safe Environment
  1. Remove Hazards: Ensure the home is free from tripping hazards, such as loose rugs or clutter. Install handrails and grab bars in high-risk areas.
  2. Medication Safety: Organize and administer medications as prescribed. Consider using medication management tools like pill organizers.
  3. Locks and Alarms: Install locks on cabinets containing dangerous items (e.g., cleaning supplies) and consider door alarms to prevent wandering.
  4. Identification: If your loved one gets lost, provide them with identification, such as an ID bracelet or a sewn-in label on clothing.
  • Establishing a Routine

People with dementia benefit from structured routines. Establish a daily schedule for meals, activities, and rest. Consistency can reduce anxiety and confusion.

  • Effective Communication
  1. Simplicity: Use clear, simple sentences and avoid jargon. Ask one question at a time.
  2. Nonverbal Cues: Pay attention to body language and facial expressions, as persons with dementia may struggle to express themselves verbally.
  3. Patience: Give your loved one time to process information and respond. Avoid correcting or arguing with them; redirect the conversation if needed.
  4. Active Listening: Listen attentively and validate their feelings. Sometimes, just being heard can ease distress.

  • Managing Behavioral Challenges

Dementia can lead to behavioral changes, such as agitation or aggression. Try these approaches:

  1. Identify Triggers: Determine what may be causing distress and address those issues. Common triggers include hunger, pain, or unfamiliar surroundings.
  2. Distraction: Redirect their attention to a different activity or topic to diffuse difficult situations.
  3. Validation Therapy: Acknowledge their feelings and concerns, even if they seem irrational. This can help reduce anxiety.
  4. Consistent Caregivers: If possible, maintain a consistent team of caregivers to provide stability and familiarity.
  • Maintaining Personal Hygiene
  1. Routine: Establish a daily hygiene routine, including bathing, oral care, and changing clothes.
  2. Respect and Dignity: Be respectful and patient when assisting with personal care tasks. Maintain their privacy and dignity.
  3. Adaptive Products: Consider using adaptive aids like handrails in the bathroom or a shower chair for safety and comfort.
  • Nutrition and Mealtime
  1. Nutrient-Rich Diet: Focus on providing well-balanced meals. Consult a dietitian for guidance if needed.
  2. Finger Foods: As dementia progresses, finger foods may be easier to handle than utensils.
  3. Supervision: Supervise mealtime to ensure your loved one eats safely. Be attentive to choking risks.
  • Self-Care for Caregivers

Caring for someone with dementia can be emotionally and physically taxing. Don’t forget to take care of yourself:

  1. Support Network: Seek help from friends, family, or support groups. You’re not alone in this journey.
  2. Respite Care: Arrange for respite care to give yourself a break when needed.
  3. Self-Reflection: Recognize your limits and feelings. Don’t hesitate to seek professional help if you’re struggling with caregiver stress or burnout.
  • Take home message

Home care for persons with dementia is a noble but demanding undertaking. It requires patience, compassion, and adaptability. Understanding the unique needs of your loved one and creating a safe, structured, and supportive environment can greatly enhance their quality of life. Remember that you’re not alone, and there are resources and support available to help you navigate this challenging journey with your loved one.

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